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FIRST GENE THERAPY FOR A BLINDING EYE DISEASE RECEIVES FDA APPROVAL
Today we are celebrating the FDA’s pathbreaking approval of Luxturna. We have been following the development of Luxturna closely. Today’s landmark FDA approval makes Luxturna the first gene therapy approved in the...
READ MORERESEARCH NEWS
June 2025 Gene Therapy for XLRP does not meet primary endpoint in Phase 3 trial The Phase 3 LUMEOS trial studying the gene therapy botaretigene sparoparvovec (bota-vec) for X-linked retinitis pigmentosa (XLRP)...
READ MORENEW SURVEY INITIATIVE ENGAGES PATIENTS AS EXPERTS AND COLLABORATORS
Last year Fighting Blindness Canada launched its Vision Care Pathways (VCP) online tool, a set of resources and guides for people living with eye diseases. These diseases include rare genetic disorders such...
READ MORETHE ERA OF GENE THERAPY – A PANEL DISCUSSION
In this panel discussion from Vision Quest Vancouver on April 27, 2019, experts from around the world introduced the new era of gene therapy and discussed what this means for the future...
READ MOREUSHER SYNDROME
Jump to: Symptoms | Diagnosis | Treatment | Clinical Trials | Usher Syndrome Patient Registry | Usher Syndrome Research | Resources | References Overview Usher syndrome is a genetic disorder characterized by...
READ MOREEVERYTHING YOU NEED TO KNOW ABOUT FBC’S CANADA’S PATIENT REGISTRY
Fill out the online form on our Patient Registry page to learn more about how you can enroll. Click here to download a printable version of this article/fact sheet: PDF/Word. The Patient...
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