First gene therapy for a blinding eye disease receives FDA approval
Today we are celebrating the FDA’s pathbreaking approval of Luxturna. We have been following the development of Luxturna closely. Today’s landmark FDA approval makes Luxturna the first gene therapy approved in the…
Research News
April 2024 Sight loss may be caused by gut bacteria in some IRDs A study published in the high impact journal Cell, suggests that a particular genetic mutation may allow gut bacteria…
New Survey Initiative Engages Patients as Experts and Collaborators
Last year Fighting Blindness Canada launched its Vision Care Pathways (VCP) online tool, a set of resources and guides for people living with eye diseases. These diseases include rare genetic disorders such…
The Era of Gene Therapy – A Panel Discussion
In this panel discussion from Vision Quest Vancouver on April 27, 2019, experts from around the world introduced the new era of gene therapy and discussed what this means for the future…
X-Linked Retinoschisis
Jump to: Symptoms | Diagnosis | Treatments | Clinical Trials | Patient Registry | Research | Resources | References Overview X-linked retinoschisis (XLRS) is a genetic disorder that causes vision loss and…
Usher Syndrome
Jump to: Symptoms | Diagnosis | Treatment | Clinical Trials | Patient Registry | Research | Resources | References Overview Usher syndrome is a genetic disorder characterized by the loss of both…
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