Dr. Koenekoop – Natural History Clinical Trial For Type 1C Usher Syndrome
Scientific Title: Antisense therapy for the treatment of visual loss in Usher Syndrome
Lead Investigator: Dr. Robert Koenekoop
Institution: The Research Institute of the McGill University Health Centre
Granted: $226,960 over 5 years, 2019 – 2024
Dr. Robert Koenekoop will be starting a natural history clinical trial in Canada for individuals with Usher syndrome caused by mutations in the USH1C gene. This study is an important step in the process of bringing a new treatment to clinical trials-especially for rare diseases. It helps researchers understand more about the disease and is critical to find patients who may be eligible for any future treatment.
Join the Fight!
Learn how your support is helping to bring a future without blindness into focus! Be the first to learn about the latest breakthroughs in vision research and events in your community by subscribing to our e-newsletter that lands in inboxes the beginning of each month.