Must Read Resources

You might have heard about stem cell therapy in the news and wondered how it works or if it could help you or someone you know who is living with vision loss….

When it comes to innovative therapies for treating eye diseases no approach has gained more attention than gene therapy. And rightfully so. The first gene therapy for any eye disease (Luxturna®) was…

What is a retinal prosthesis? A retinal prosthesis is a non-living electronic substitute for the retina. Popular and brand names for retinal prostheses are the Bionic Eye and the Argus II. The…

What is the Patient Registry? The Patient Registry is a secure medical database that was designed to connect people living with inherited retinal diseases (IRDs), such as retinitis pigmentosa, Stargardt disease, Usher…

What is a gene? Genes are the basic building blocks of life and heredity. Genes are made from DNA and provide the instructions that the body needs to function. Each gene contains…

When can I expect a cure for my eye disease? Let’s start with the big one. As anyone affected by vision loss knows, this is the question. While it would be irresponsible…

What is a clinical trial? Clinical trials are experiments that test whether a new intervention, such as a drug, gene therapy, or surgery, will work in people. The main goal of a…