fbpx
Skip To Content
Sep 27, 2018

Announcing the FBC’s Vision Care Pathways

Fork in the Road

Along with the brain, the eye is one of the human body’s most intricate components, an elaborate collection of parts working in tandem to do one thing: gather external light and focus it on a small area of tissue at the back of the eye. Cells housed in the tissue absorb light particles and transmit information to the brain, which in turn forms a “picture” of what we see.

It is perhaps unsurprising, then, that when the eye, that most complex of body parts, doesn’t work as it should, the pathways to treatment and for the management of vision loss are equally complex.

The nebulous web of programs, policies, and instructions that constitute vision care in Canada can be difficult to navigate, which is why Fighting Blindness Canada (FBC) has developed an online tool to help guide patients toward their optimal pathways. We call it Vision Care Pathways, and it functions as our premier guide to eye disease and patient information.

Accessed through the Eye Diseases & Pathways section at the top of this site, the tool connects individuals to relevant information on fightingblindness.ca through the lens of one’s eye disease. Selecting retinitis pigmentosa, for example, will take you to a page that provides an overview of the disease. From there, the page covers the essential points related to the disease’s “symptoms and diagnosis,” as well a summary of “existing treatments,” if there are any.

In relation to clinical trials, the page includes a mechanism that links to the site clinicaltrials.gov, a database of trials offered globally, automatically populating the name of the eye disease and performing a search for relevant trials. We also provide information to orient patients in the complicated and often shifting world of clinical trials, including a disclaimer that explains some of the problems with clinicaltrials.gov (the site is run by the National Institutes of Health, a US health agency, but the trials are not vetted or quality-checked).

If the disease is an inherited one (i.e. one that is primarily genetic), the page will also have a section describing FBC-run Patient Registry, a secure database that can directly connect Canadian patients to clinical trials. And every eye disease page has a section that describes emerging developments in research and health policy, called “research developments and health policy,” as well as a list of education resources relevant for all patients. To ensure information on each disease is up to date, new content relevant to the disease updates automatically in a news scroller along the side of the page.

The Vision Care Pathways tool is a patient-centered approach to providing Canadians living with vision loss and blindness with the best information possible, empowering them to locate their ideal pathways through vision care—but our work isn’t finished. The pages were designed to be as accessible as possible, but we still have people going through content to ensure this is the case. We also have plans for additional video content that will supplement the written information on each page, as well as location and disease-specific lists of ophthalmologists and low vision specialists.

Your input on this tool is incredibly valuable. Please let us know what you think, or whether you encounter any difficulties, by emailing Dr. Chad Andrews at candrews@fightingblindness.ca.

Latest FBC News View All

Collage of photos
Apr 25, 2019

A Message from the President and CEO For 45 years, the Foundation Fighting Blindness has raised and directed critical funding into sight-saving research for blinding eye diseases. From our earliest days as…

Read More
Dr. Mike Sapieha holding microphone
Jul 9, 2019

FBC-funded scientist Dr. Mike Sapieha is an associate professor at the University of Montreal. This year, he was the recipient of ARVO’s prestigious Cogan Award, which recognizes an outstanding researcher under the…

Read More
Ramya holding whiteboard #SeeMeAs
Jul 9, 2019

This is a guest post written by Ramya Amuthan, who attended FBC’s Young Leader Summit in Vancouver. To learn more about the Young Leaders Program and upcoming Summits in Toronto and Halifax,…

Read More
Dave poses with his wife Donna and their two children Michelle and Christine
Jul 9, 2019

Each year, Cycle for Sight brings together members of the Fighting Blindness Canada community for the perfect one-day ride. From its roots as a “ride-along” part of Ride for Sight, Cycle for…

Read More

Join the Fight!

Learn how your support is helping to bring a future without blindness into focus! Be the first to learn about the latest breakthroughs in vision research and events in your community by subscribing to our eNews.

I have read and accepted the privacy policy