Patient Registry
Are you living with an inherited retinal disease? Are you interested in helping to advance research in Canada and in contributing to the development of new treatments and cures? If so, consider enroling in our Patient Registry!
Fighting Blindness Canada’s IRD Patient Registry is a secure medical database where Canadians may submit information about their inherited retinal disease. This information will be used to connect participants to clinical trials and research. In addition, the patient registry provides information about the number of Canadians living with IRDs which is crucial to drive sight saving research, influence health care decision making and improve access to new treatments.
Access our patient registry primer.
The Patient Registry has been made possible, in part, by funds received from Janssen, MeiraGTx, and Novartis. Fighting Blindness Canada is solely accountable for the information shared on the Patient Registry pages. This content has been developed without the influence of our funding partners.
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