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Oct 15, 2020

On October 14, 2020, Health Canada announced their approval of the first sight-restoring innovative treatment voretigene neparvovec (Brand name: Luxturna). This announcement is the first targeted gene therapy approved in Canada for…

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Oct 8, 2020

Every year, the cost of inherited retinal diseases (IRDs) in Canada is $1.6 billion, a cost largely borne by affected individuals and their families. IRDs, including retinitis pigmentosa, rod-cone dystrophy, and Stargardt…

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older woman sitting in a wide chair while looking out of a bright big window with a cup of tea in hand
Oct 5, 2020

INTRODUCTION My name is Marlene Cust. I am a senior citizen, and legally blind due to retinitis pigmentosa (RP) and age-related macular degeneration (AMD). In my writing, I want to acknowledge both…

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Sep 30, 2020

October is an exciting month for Fighting Blindness Canada’s Young Leaders Program. Established in 2015, the Young Leaders Program provides blind or partially sighted people aged 15-30 with tools to develop skills…

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Sep 4, 2020

Meet the Expert: Dr. Robert Koenekoop is a Montreal-based clinician-scientist, meaning he is both a medical doctor, trained in Ophthalmology and also does research about inherited retinal diseases (IRDs). He’s also a…

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Son and Mother walking towards a green space with trees
Sep 4, 2020

Tavish Gillan is a vibrant teen who’s full of heart and positive energy. At the early age of eight, Tavish began to experience challenges with his night vision and exotropia –a condition…

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