On October 14, 2020, Health Canada announced their approval of the first sight-restoring innovative treatment voretigene neparvovec (Brand name: Luxturna). This announcement is the first targeted gene therapy approved in Canada for…Read More
Every year, the cost of inherited retinal diseases (IRDs) in Canada is $1.6 billion, a cost largely borne by affected individuals and their families. IRDs, including retinitis pigmentosa, rod-cone dystrophy, and Stargardt…Read More
INTRODUCTION My name is Marlene Cust. I am a senior citizen, and legally blind due to retinitis pigmentosa (RP) and age-related macular degeneration (AMD). In my writing, I want to acknowledge both…Read More
October is an exciting month for Fighting Blindness Canada’s Young Leaders Program. Established in 2015, the Young Leaders Program provides blind or partially sighted people aged 15-30 with tools to develop skills…Read More
Meet the Expert: Dr. Robert Koenekoop is a Montreal-based clinician-scientist, meaning he is both a medical doctor, trained in Ophthalmology and also does research about inherited retinal diseases (IRDs). He’s also a…Read More
Tavish Gillan is a vibrant teen who’s full of heart and positive energy. At the early age of eight, Tavish began to experience challenges with his night vision and exotropia –a condition…Read More
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