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Advocacy

FBC Event
National Young Leaders: a report on the 2018 Summit

“My perception of leadership has changed. I believe that leadership is not just about being a leader for yourself, but for your team and for what you stand for.” – 2018 Young…

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Stem Cell
2018 Summer InVision Newsletter

Our 2018 Summer InVision newsletter is now fully accessible and available online! This issue includes the following stories: – Promising Results Show the Potential for Stem-Cell Therapies to Restore Vision– Stem Cells…

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Legislature Building
Why Advocating for Better Vision Health Policy Matters

When Fighting Blindness Canada (FBC) was founded in 1974, little was know about blinding eye diseases, and even less about the genetic factors underlying inherited forms of blindness. Today that landscape has…

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Lawsuit Document
Protecting Patients by Encouraging Oversight: Can Civil Lawsuits Help?

Stem cell treatments have been advertised as miracle cures for many illnesses, including vision loss—but not all advertised “treatments” work, and some have even proven dangerous. Last year, three patients with age-related…

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FBC Collage
Stephanie Kowal on Ethical Communications

What do you want to know about clinical trials for your children? Clinical trials for gene and stem cell therapies for genetic eye diseases are underway. If these early phase trials are…

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Laura Bingenheimer
Usher Brightness

“When I was younger, I never really read about Usher syndrome, I did not want to have anything to do with it.” Until recently, Laura Bingenheimer mostly ignored the fact that she was living…

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