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New study shows staggering costs of Inherited Retinal Diseases

Every year, the cost of inherited retinal diseases (IRDs) in Canada is $1.6 billion, a cost largely borne by affected individuals and their families. IRDs, including retinitis pigmentosa, rod-cone dystrophy, and Stargardt...

Eye Health Videos

Fighting Blindness Canada (FBC) has partnered with Accessible Media Inc. (AMI) to produce a series of videos about vision health and a variety of eye diseases, hosted by Dr. Ana Juricic. Dr. Ana...

Looking into the genetics of inherited retinal diseases with Dr. Rob Koenekoop

Meet the Expert: Dr. Robert Koenekoop is a Montreal-based clinician-scientist, meaning he is both a medical doctor, trained in Ophthalmology and also does research about inherited retinal diseases (IRDs). He’s also a...

11 years in the making: Supreme Court of Canada upholds Genetic Non-Discrimination Act (GNDA)

In the past decades, genetic testing has played a growing role in the diagnosis of inherited eye diseases such as retinitis pigmentosa, Usher syndrome and Leber Congenital Amaurosis. Not only can a...

How FBC’s Health Information Line supports you: Q&A with Health Information Officer Shari Shaw

Vision health information can be hard to navigate. Whether you or someone you know has been newly diagnosed with an eye disease, or have been living with an eye disease and are...

Research News

April 2025 Eye drops may slow vision loss in retinal diseases Researchers at the National Institutes of Health (NIH) have developed eye drops that may help slow vision loss in people with...