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Gene therapy Luxturna recommended for public health care coverage
Another hurdle in the process to bring the gene therapy Luxturna to Canadians has been cleared! In the last few weeks, the Canadian Agency for Drugs and Technologies in Health (CADTH) and…
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The Way I See It Blog Series: Coming to our Senses
Introduction My name is Marlene Cust. I am a senior citizen, and legally blind due to retinitis pigmentosa and age-related macular degeneration. In my writing, I want to acknowledge both the challenges…
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The Way I See It Blog Series: Seeing Things
Introduction My name is Marlene Cust. I am a senior citizen, and legally blind due to retinitis pigmentosa and age-related macular degeneration. In my writing, I want to acknowledge both the challenges…
READ MORE
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Sharing the Laughter. Seeing the Hope.
This year, our highly anticipated annual Comic Vision and Last Call comedy fundraising events joined to bring a new virtual comedy night experience, ‘Comedy from the Couch’ that took place on Saturday,…
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THE FUTURE IS BRIGHT: HEALTH CANADA APPROVES FIRST SIGHT-RESTORING GENE THERAPY FOR INHERITED EYE DISEASES
On October 14, 2020, Health Canada announced their approval of the first targeted gene-therapy treatment voretigene neparvovec (Brand name: Luxturna) for an inherited retinal disease (IRD). This announcement is the first targeted…
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New study shows staggering costs of Inherited Retinal Diseases
Every year, the cost of inherited retinal diseases (IRDs) in Canada is $1.6 billion, a cost largely borne by affected individuals and their families. IRDs, including retinitis pigmentosa, rod-cone dystrophy, and Stargardt…
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