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Usher Syndrome

FDA Rules Against For-Profit Stem Cell Company

Quick on the heels of last week’s Washington Post article discussing the dangers of stem cell therapy, a U.S. federal judge ruled in favour of the Food and Drug Administration (FDA) in…

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Patient Study: LCA-10 And USH2

We are letting our community know about a patient experience study being conducted by Medicys Ltd., a medical research company that is looking for people with a confirmed diagnosis of Usher syndrome…

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Together We Will Cure Blindness
Together We Will Cure Blindness

Right now, over one million Canadians are living with blinding eye diseases and as vision fades, so too can hope. To date, donors of the Fighting Blindness Canada (FBC) have contributed more…

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Celebre Collage
Celebre Family Raises Over $13,000 for the FBC

On Saturday, October 20, 2018, family and friends of the Celebre’s came together in support of one very special little boy. Nicholas Celebre was born with Usher syndrome, a condition that causes…

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Julia Bonnett and Family
“I want to see my children’s faces.”

Story guest-authored by Julia Bonnett. I knew I was losing my sight. During college, I was diagnosed with retinitis pigmentosa (RP), a disease that progressively narrows my field of vision and leads…

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Help Canadians Benefit from Stem-Cell Therapies – Sign the Petition

Since 2001, our friends at the Stem Cell Network (SCN) have been transforming stem cell research, bringing it closer to the clinic and marketplace. As the only national network of regenerative medicine…

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Latest FBC News View All

Collage of photos
Apr 25, 2019

A Message from the President and CEO For 45 years, the Foundation Fighting Blindness has raised and directed critical funding into sight-saving research for blinding eye diseases. From our earliest days as…

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Dr. Mike Sapieha holding microphone
Jul 9, 2019

FBC-funded scientist Dr. Mike Sapieha is an associate professor at the University of Montreal. This year, he was the recipient of ARVO’s prestigious Cogan Award, which recognizes an outstanding researcher under the…

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Ramya holding whiteboard #SeeMeAs
Jul 9, 2019

This is a guest post written by Ramya Amuthan, who attended FBC’s Young Leader Summit in Vancouver. To learn more about the Young Leaders Program and upcoming Summits in Toronto and Halifax,…

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Dave poses with his wife Donna and their two children Michelle and Christine
Jul 9, 2019

Each year, Cycle for Sight brings together members of the Fighting Blindness Canada community for the perfect one-day ride. From its roots as a “ride-along” part of Ride for Sight, Cycle for…

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