Usher Syndrome

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2026 Research Round-Up: Advances in Inherited Retinal Disease

Inherited retinal disease (IRD) research continues to move forward on many fronts. This year, one important trend we’re seeing is how many potential treatments are advancing into later stages of clinical testing….

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Rare Disease Day: An Update on Inherited Retinal Disease Research

February 28 is Rare Disease Day. In recognition of the day, Fighting Blindness Canada is raising awareness to drive change for those with rare diseases, including an inherited retinal disease (IRD). New…

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FBC researcher investigating the cause of vision loss in Usher syndrome

In early 2020, Fighting Blindness Canada was pleased to announce a new research award for Dr. Vincent Tropepe (University of Toronto) to study the genetic basis of Usher syndrome, the most common…

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2020 Vision Summit

In recognition of the symbolic year 2020, Fighting Blindness Canada, the Canadian Council of the Blind, and other national vision organizations are hosting a summit in Ottawa on February 12 called the…

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2019 Research Grant Winners

We’re kicking off 2020, the Year of Vision, with a huge thank you to our generous donors and supportive community. Thanks to your generosity, Fighting Blindness Canada is funding six new research…

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FBC-Funded Researcher Bringing New Clinical Trial to Canada

This month, we’re pleased to announce that Dr. Robert Koenekoop—a long-time FBC-funded researcher—will be bringing a natural history clinical trial to Canada focused on developing an effective treatment for Usher syndrome caused…

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