Skip To Content
Jul 3, 2018

What Will the Future be Like for My Son?

Steve K

Guest post from Steve’s mom, Catherine Kirugi

Like most kids his age, my 9-year old son Steve asks a lot of questions. But one of them always breaks my heart.

“Mom, why am I blind?”

When Steve was just a few months old, he was diagnosed with the eye disease Leber congenital amaurosis (LCA). My husband Dominic and I had never heard of LCA before, but now we know it’s one of the most common causes of blindness in children.

LCA affects young children. Most of them, like Steve, only ever see faint traces of lights or shadows.

Today, Steve has a pretty busy schedule. He has after-school activities like judo, swimming and goal ball, a sport specifically for the visually impaired. There’s never a dull moment.

When he’s home, we try to get him to do his homework and his daily chores. Like a typical 9-year-old, I have to remind him to make his bed and clean his room.

He’s got such an incredible, positive personality. But sometimes, when his friends are talking about things they’re doing, I can sense his frustration. I think that’s going to happen even more as he gets older, and starts to understand the challenges he’ll face in life. It’s something I think about every day.

Dominic and I are doing everything we can to prepare Steve for life as an adult. Not just an adult without vision, but an adult who can live to his full potential and contribute to his community.

We feel fortunate to have found Fighting Blindness Canada (FBC). They told us about cutting-edge research that could eventually help Steve and so many other kids like him.

We know how hard they’re working on finding the causes, treatments and, someday, cures for blinding eye diseases. That gives me so much hope for Steve’s future.


Latest FBC News View All

Collage of photos
Apr 25, 2019

A Message from the President and CEO For 45 years, the Foundation Fighting Blindness has raised and directed critical funding into sight-saving research for blinding eye diseases. From our earliest days as…

Read More
Sep 9, 2019

This year, participants in Cycle for Sight events across the country set off on exciting routes through farmland, fields, and country lanes. As with any adventure, our cyclists occasionally came across the…

Read More
Sep 5, 2019

Alongside our partners at the Canadian Retina Society, the Canadian Council of the Blind, and Novartis, we’re raising awareness about the signs and symptoms of age-related macular degeneration. Check out our PSA,…

Read More
Laboratory Researchers
Sep 5, 2019

This month, the Inherited Retinal Dystrophies Consortium Operating for the Under-Represented for Novel Therapies and Services (IRD COUNTS) released a landmark study highlighting the personal costs of living with an inherited retinal…

Read More

Join the Fight!

Learn how your support is helping to bring a future without blindness into focus! Be the first to learn about the latest breakthroughs in vision research and events in your community by subscribing to our eNews.

I have read and accepted the privacy policy