Patient Registry

Important Things To Consider

By filling out this online form, you are not enrolling in the Patient Registry. Rather, you are expressing interest in the registry and allowing Fighting Blindness Canada to contact you with more information. This is a necessary first step to start the enrolment process.

Once you have filled out the form, you will receive an email with the contact information for your closest enrollment site. You must contact the enrollment site yourself. The enrollment site will send you a consent form to fill out. Once you have signed and returned your consent form. you are considered enrolled in the patient registry.

You do not have to get genetic testing to enroll in the Patient Registry. However, getting your genetic testing is the best way to find out if there is a clinical trial for you.

If you have any questions, or would like help filling out this form, contact us at 1-888-626-2995 or healthinfo@fightingblindness.ca.

IMPORTANT NOTE:

Fighting Blindness Canada helps fund and raise awareness of the IRD Patient Registry, but we do not operate the Patient Registry or hold participant data. All information is collected, stored, and managed by the clinical sites that oversee the Patient Registry.

By signing up, individuals may be contacted about clinical studies, research opportunities, or treatments related to their condition. Any outreach is made at the discretion of the clinical site lead and depends on criteria such as study criteria and site capacity. Joining the Patient Registry does not guarantee that you will be contacted or matched to a study.