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Their parents thought they were afraid of the dark. Then these twins learned the truth — and the fight to save their sight began
Nathan and Andre needed a game-changing gene-specific therapy. But the costs were astronomical and the parents were at a loss. Here’s how I witnessed their story go from tragic to triumphant. Twins…
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Stepping out of your comfort zone and manifesting opportunities with Nick D’Ambrosio.
Nick D’Ambrosio is a 51-year-old Italian Canadian from Montréal, Québec living with sight loss due to an inherited retinal disease called retinitis pigmentosa (RP). Following an early diagnosis, Nick found it difficult…
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NAC Attack: A Phase III clinical trial to test an oral therapy for retinitis pigmentosa
Starting in 2023, a new clinical trial called NAC Attack will be launched to test an oral medication, N-acetylcysteine (NAC), as a potential therapy for patients with retinitis pigmentosa (RP). NAC Attack…
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Developing a new therapy for age-related macular degeneration and diabetic retinopathy.
Dr. Sachdev Sidhu (University of Toronto) is a biomedical engineer with extensive experience in drug development. Dr. Sidhu established the Toronto Recombinant Antibody Centre (TRAC) which houses a state-of-the-art platform to generate…
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FBC scientists collaborate to identify new gene for retinitis pigmentosa
Teamwork really does make the dream work! We are excited to share news of a Fighting Blindness Canada (FBC) funded discovery recently published in the journal Science Advances achieved through a collaboration…
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Fighting Blindness Canada urges Provinces to Sign Agreement for Sight-Saving Treatment
Fighting Blindness Canada is pleased to hear the announcement that Canadians are one step closer to accessing Luxturna® (generic name: voretigene neparvovec)i, a sight-saving gene therapy. The pan-Canadian Pharmaceutical Alliance has concluded…
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