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New study shows staggering costs of Inherited Retinal Diseases

Every year, the cost of inherited retinal diseases (IRDs) in Canada is $1.6 billion, a cost largely borne by affected individuals and their families. IRDs, including retinitis pigmentosa, rod-cone dystrophy, and Stargardt…

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THE WAY I SEE IT BLOG SERIES: THE BEST THINGS IN LIFE

INTRODUCTION My name is Marlene Cust. I am a senior citizen, and legally blind due to retinitis pigmentosa (RP) and age-related macular degeneration (AMD). In my writing, I want to acknowledge both…

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Introducing FBC’s 2020 Young Leaders Program Co-Chairs

October is an exciting month for Fighting Blindness Canada’s Young Leaders Program. Established in 2015, the Young Leaders Program provides blind or partially sighted people aged 15-30 with tools to develop skills…

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Looking into the genetics of inherited retinal diseases with Dr. Rob Koenekoop

Meet the Expert: Dr. Robert Koenekoop is a Montreal-based clinician-scientist, meaning he is both a medical doctor, trained in Ophthalmology and also does research about inherited retinal diseases (IRDs). He’s also a…

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New this year: Comedy from the Couch

For the past 21 years, Fighting Blindness Canada’s (FBC) annual fundraising events Comic Vision and Last Call have delivered a night to remember, bringing supporters together to  help raise over $9 million…

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THE WAY I SEE IT BLOG SERIES: Bridging the Gap

My name is Marlene Cust. I am a senior citizen, and legally blind due to retinitis pigmentosa (RP) and age-related macular degeneration (AMD). In my writing, I want to acknowledge both the…

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