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“I want to see my children’s faces.”

Story guest-authored by Julia Bonnett. I knew I was losing my sight. During college, I was diagnosed with retinitis pigmentosa (RP), a disease that progressively narrows my field of vision and leads…

Inaugural Recipient of the Restore Vision 20/20 Award Announced!

There is no doubt that funding vision research is the surest path to developing new sight-saving treatments. Just ask our Scientific Advisory Board. September 5, 2018 was a very special day for…

$3.09 million in funding for blinding eye diseases is “a real success story for FBC”

When Dr. Michel Cayouette learned the astounding news that he had been awarded $3.09 million from the Canadian Institutes of Health Research (CIHR) to support his research into blinding eye diseases for…

What Will the Future be Like for My Son?

Guest post from Steve’s mom, Catherine Kirugi Like most kids his age, my 9-year old son Steve asks a lot of questions. But one of them always breaks my heart. “Mom, why…

RNA Therapies for Inherited Retinal Diseases (IRDs)

I recently participated in a tremendously inspiring meeting, hosted by ProQR, which is a company that is creating new treatments for people living with rare diseases, including blinding eye diseases. ProQR specializes…

Protecting Patients by Encouraging Oversight: Can Civil Lawsuits Help?

Stem cell treatments have been advertised as miracle cures for many illnesses, including vision loss—but not all advertised “treatments” work, and some have even proven dangerous. Last year, three patients with age-related…

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