News

Image is of Andre and Nathan
Oct 3, 2022

Nathan and Andre needed a game-changing gene-specific therapy. But the costs were astronomical and the parents were at a loss. Here’s how I witnessed their story go from tragic to triumphant. Twins…

Read More about Their parents thought they were afraid of the dark. Then these twins learned the truth — and the fight to save their sight began
Image is of a man walking using a white cane.
Sep 30, 2022

Nick D’Ambrosio is a 51-year-old Italian Canadian from Montréal, Québec living with sight loss due to an inherited retinal disease called retinitis pigmentosa (RP). Following an early diagnosis, Nick found it difficult…

Read More about Stepping out of your comfort zone and manifesting opportunities with Nick D’Ambrosio.
Image is of white pills, reminiscent of the NAC Attack pills
Sep 29, 2022

Starting in 2023, a new clinical trial called NAC Attack will be launched to test an oral medication, N-acetylcysteine (NAC), as a potential therapy for patients with retinitis pigmentosa (RP). NAC Attack…

Read More about NAC Attack: A Phase III clinical trial to test an oral therapy for retinitis pigmentosa
Image is of a lab tech looking through a microscope.
Sep 29, 2022

Dr. Sachdev Sidhu (University of Toronto) is a biomedical engineer with extensive experience in drug development. Dr. Sidhu established the Toronto Recombinant Antibody Centre (TRAC) which houses a state-of-the-art platform to generate…

Read More about Developing a new therapy for age-related macular degeneration and diabetic retinopathy.
Image is of a researcher exploring liquids using medical viles.
Sep 26, 2022

Teamwork really does make the dream work! We are excited to share news of a Fighting Blindness Canada (FBC) funded discovery recently published in the journal Science Advances achieved through a collaboration…

Read More about FBC scientists collaborate to identify new gene for retinitis pigmentosa
DNA strand
Sep 22, 2022

Fighting Blindness Canada is pleased to hear the announcement that Canadians are one step closer to accessing Luxturna® (generic name: voretigene neparvovec)i, a sight-saving gene therapy. The pan-Canadian Pharmaceutical Alliance has concluded…

Read More about Fighting Blindness Canada urges Provinces to Sign Agreement for Sight-Saving Treatment

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